Senior Laurel Rakers’ father, Lyle Rakers, has been fighting Lou Gehrig Disease (ALS) for the past four years. ALS is a nervous system disease that breaks down muscles and impacts physical function.
“[Lyle] went to the doctor because his muscles started twitching and they tested his blood. They took out pieces of his muscles and his nerves to see what the issue was. They couldn’t really figure out what it was until he got a call to go to the doctor. They told him he had Brachial Amyotrophic Diplegia and it was incurable,” Laurel said.
As a result, people with ALS have trouble being independent or active. It can be challenging to do daily tasks such as brushing hair, buttoning up shirts, and even walking.
“[ALS] has honestly affected him in every way. He can’t do a lot of things anymore. If he walks 30 yards, he has to rest so we just got him a wheelchair,” Laurel said. “He used to be one of the strongest people I knew. He would fix anything and everything in the house without a problem and lift all sorts of heavy objects. But now he can barely lift a cup to his mouth to get a drink. It’s really just all these little things that make it hard for him to do anything anymore.”
Knowing ALS does not have a cure, the Rakers family began a foundation to raise funds and awareness of the disease. In September they hosted their third golf tournament, raising over $105,000 for the Lyle Rakers Charitable Foundation.
“[Receiving the news that there is no cure to ALS] was definitely a little difficult for me because it sucks to be in a place where you have to raise money to ‘try’ to find a cure,” Laurel said. “It’s honestly such a great feeling to know that all of these people support and care for my dad and others like him. Everything makes a difference and this event was very special to me.”
In addition to the golf tournament, Laurel turned to her varsity volleyball team for additional support. Together, they made lemonade out of lemons.
“It really meant a lot to me and my family that the volleyball program put this night together for people with ALS,” Laurel said. “The night was amazing and it was cool to see the other families in the same situation as my dad.”
Rakers says her dad’s attitude brings her light in this dark situation.
“He is just a happy and funny person all around so when it comes to all of these things, he takes it all lightly. He jokes around about it sometimes and tells my brother and I about how he used to be amazing at everything,” Laurel said. “It’s honestly reassuring to see him do this because we know he is okay and that he is still the same person no matter what.”
If you would like to help Lyle and the Rakers family with their cause, you can donate here.
Maggie Patel • Apr 22, 2025 at 8:59 pm
I was diagnosed with Bulbar ALS. I had weakness in my arms legs and hands. I lost all of my strength. I had to keep pliers and wrenches scattered around to open things. I couldn’t walk very far, and I lost my balance easily. I had trouble swallowing and drool sometimes. It impacted all my voluntary moves. My hands shake when I eat or write. this year my family doctor decided I try alternative treatment as Riluzole caused severe side effects I started on ALS/MND protocol from uine health centre which has made my coordination issues go away. That was the biggest thing that convinced me I was on the right track. Everything before that was just small improvements and was up and down at times. I have gained strength in all muscle, but my right wrist and left shoulder are the slowest to improve. My left wrist is almost back to 100%. we got the treatment from uinehealth centre. com This is a game changer for people with ALS.
Maggie Patel • Apr 22, 2025 at 11:26 am
I was diagnosed with Bulbar ALS. I had weakness in my arms legs and hands. I lost all of my strength. I had to keep pliers and wrenches scattered around to open things. I couldn’t walk very far, and I lost my balance easily. I had trouble swallowing and drool sometimes. It impacted all my voluntary moves. My hands shake when I eat or write. this year my family doctor decided I try alternative treatment as Riluzole caused severe side effects I started on ALS/MND protocol from uine health centre which has made my coordination issues go away. That was the biggest thing that convinced me I was on the right track. Everything before that was just small improvements and was up and down at times. I have gained strength in all muscle, but my right wrist and left shoulder are the slowest to improve. My left wrist is almost back to 100%. we got the treatment from uine healthcentre. co m This is a game changer for people with ALS.
Marla Boot • Nov 7, 2021 at 9:33 am
Hi Lyle! We still think of you so often, always with wonderful memories of how helpful and kind you were to us! Our prayers are with you and your family! We pray there will be help for you soon! Love, Mike and Marla