Freshman Jordan Russell overcomes obstacles from growth and development disorders

Standing at 4’5”, freshman Jordan Russell is noticeably shorter than her peers.

Russell was born with a rare disease called Russell Silver Syndrome. It is a growth disorder, which means she has a difficult time growing at the expected rate. Many times children with this condition can have asymmetric or uneven growth of some parts of the body and digestive system abnormalities.

“I want to be remembered as always being positive and friendly. I want to be someone who you can always count on to make you smile,” Russell said.

Russell also has spinal dysplasia, a condition that causes abnormal bone development. It can be difficult for her to carry lots of weight for long periods of time.

“I think I’m always judged on my height and my rolling backpack,” Russell said. “I would love to be able to go anywhere, anytime and be normal like everyone else. But, I can’t change it, so I’m not going to worry.”

Russell Silver Syndrome can sometimes be associated with increased risk of delayed development and learning disabilities. Russell faces many challenges as she goes throughout her school day.

“I have small hands that can’t grip a pencil for long periods of time, so I have to get written notes. I get trampled a lot, so it’s not always fun walking in the hallways,” Russell said. “There’s a lot of things I can’t do, but there’s a lot of things I can do.”

Russell is a singer. She has participated in minor auditions in front of casting directors.

“When I auditioned for a talent agency I had to sing in front of this big group. We went one by one, and I was the only person the director clapped for,” Russell said. “She told me I was amazing and it made me feel like I was worth something. I felt overjoyed that someone so important would clap for me and I did indeed get the part.”

Russell’s parents forced her to join church choir in kindergarten and she has loved singing ever since.

“My favorite part about singing is that you can take any song you want and make it your own,” Russell said.

With the support of her family, Russell is able to conquer obstacles.

“My big family impacts my life a lot. I have more than 48 cousins and I am very grateful for them,” Russell said. “My family runs on humor so they always make me feel better when I’m upset.”

Russell describes herself as extraordinary and filled with personality.

“I may be small, but my personality is big,” Russell said.